No one in my family believed me when I told them what I was experiencing. Even after seeing multiple neurologists & a specialist, no one believed me, including doctors and my twin brother. I was featured on National TV (Nbc - The Karamo Show) to share my story and take a lie detector test to prove I've been telling the truth about my illness. The ending result was that I was telling the truth about my symptoms & it's severity. After I appeared on tv, I reconnected with my twin brother and restored our relationship. Sadly none of my older children, siblings, or extended family recognize how severe my illness is because they chose to distance themselves from me. My only support system Is my twin brother, my beautiful wife Roxanne of twenty years and my 2 younger children. My twin brother recently purchased me a wheelchair so that I can be more mobile but everyday is still a struggle because my strength has worsened to where It's impossible for me to do simple task.